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Useful Resources

Each section below contains links and references to useful information for each of the ENRICH audiences. Click on a heading to view the contents of that section.

Resources for Research Community

Age UK: provides information and advice, products, training and research for older people.

Alzheimer’s Society – Selecting a care home: a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland

Association of Directors Adult Social Services (ADASS): home of the Association of Directors of Adult Social Services, and the voice of adult social care.

Better Caring: is a comprehensive care home search engine and a source of vital information on care for older people and people with learning disabilities and lists all care homes across England.

British Geriatrics Society: is a professional association of doctors practising geriatric medicine, old age psychiatrists, general practitioners, nurses, therapists, scientists and others with a particular interest in the medical care of older people and in promoting better health in old age.

Care Home UK: the website contains a detailed database of UK Care Homes and Providers, as well as Suppliers, Authorities and Associations to the UK Care Industry.

Care Quality Commission: CQC regulates health and adult social care services in England, whether they are provided by the NHS, local authorities, private companies or voluntary organisations.

Cochrane Library: independent high quality evidence for health care decision making.

DeNDRoN: as part of the National Institute for Health Research, the Dementias and Neurodegenerative Diseases Research Network (DeNDRoN) helps to provide the infrastructure that allows high-quality clinical research to be undertaken. Ensuring that patients can benefit from new and better treatments, and learning how to improve healthcare for the future.

Department of Health (Dementia): ‘living well with dementia - a National Dementia Strategy’ was published in February 2009. It set out a vision for transforming dementia services with the aim of achieving better awareness of dementia, early diagnosis and high quality treatment at whatever stage of the illness and in whatever setting.

ECCA: is the largest representative body for community care in England.

End of life care for community dwelling older people with dementia: an integrated review

Housing and Care for Older People Research Network: the network bring together researchers interested in the role of housing in social care.

Medical Research Council Clinical Trials Unit: The MRC Clinical Trials Unit (CTU) is a centre of excellence for clinical trials, meta-analyses and epidemiological studies. 

Medicines and Healthcare products Regulatory Agency (MHRA) is the government agency which is responsible for ensuring that medicines and medical devices work, and are acceptably safe. The MHRA is an executive agency of the Department of Health.

My home life: Is a new initiative aimed at improving the quality of life of those who are living, dying, visiting and working in care homes for older people. It provides hub of information and shares best practice with those working in this setting.

National Care Home Research and Development Forum: provides a platform for researchers and practitioners to network, share information and ideas arising from their work.

National Institute for Health Research: creates a health research system in which the NHS supports outstanding individuals, working in world class facilities, conducting leading edge research focused on the needs of patients and the public.

National Research Ethics Service (NRES): protect the rights, safety, dignity and well-being of research participants; and facilitates and promotes ethical research that is of potential benefit to participants, science and society. 

NHS End of Life Care Programme: the programme works with health and social care services across all sectors in England to improve end of life care for adults by implementing the Department of Health’s End of Life Care Strategy.

NHS Research and Development Forum: a network for those involved in managing and supporting R&D in health and social care. There aim is to improve the environment for research in health and social care by facilitating and encouraging sharing of best practice.

NIHR Clinical Research Network: as part of the National Institute for Health Research, the Clinical Research Network helps to provide the infrastructure that allows high-quality clinical research to take place in the NHS, so that patients can benefit from new and better treatments, and they can learn how to improve NHS healthcare for the future.

NIHR School for Social Care Research: develops the evidence base for adult social care practice by commissioning and conducting world-class research.

NIHR Service Support Research: a website that provides information for researchers on service support costs.

NRES Integrated Research Application system: a website that captures the information needed for the relevant approvals from research review bodies.

Personal Social Services Research Unit (PSSRU): carries out independent research aimed at improving the equity and efficiency of social and health care.

Scottish Dementia Clinical Research Network

Social Care Institute for Excellence (SCIE): gathers and analyses knowledge about what works and translates that knowledge into practical resources, learning materials and services. Their work helps to improve the knowledge and skills of those working in care services. 

Social Care Research Ethics Committee: The Social Care REC reviews adult social care research study proposals, intergenerational studies involving adults and children or families, use of social care databases and some proposals for social science studies situated in the NHS

Social Services Research Group: an independent network of individuals who provide a range of research information, planning and evaluation in social care and health services.

UKCRC Regulatory & Governance Advice Service: provides advice on the changes to the regulatory and governance environment across the UK clinical research community.

 

Research Community Publications

Aging and Mental Health - Culture, consent, costs and care homes: Enabling older people with dementia to participate in research

British Geriatric Society: Quest for Quality

Care Standards Act 2000

Centre for Policy on Ageing – Increasing the voice, choice and control of older people

Challenges to research in nursing homes – Sue Hall et al

Cochrane Report

Culture of care in care homes in need of further research, British journal of nursing    vol. 11, no2

Dementia and well-being: possibilities and challenges

Essential Standards of Quality and Safety Care Quality Commission 26 2010.

Evidence based interventions in Dementia

Gold Standards Framework for Care Homes

Improving care in residential homes: The Joseph Rowntree Foundation

Introducing SOFI: A new tool for inspection of care homes (Short Observation Framework for Inspection) Journal of Dementia Care. Brooker, D. et al, (2007),15 (4): 22‐23:

Laing and Buisson 2010 Care of Elderly People UK Market Survey 2010-11. National Audit Office Improving Dementia Services in England –an interim report part on 2010 18.

MCOP Study

Mental Health Capacity Act

Mental Health and Care Homes, Oxford University Press

My Home Life  - Quality of Care

National Institute for Clinical Excellence – Dementia Guidelines

NHS Choices – information on care homes

NHS support for non-commercial externally funded R&D

NIHR School for Social Care Research (SSCR) Methods Reviews

Older People's Health and Wellbeing

Promoting Action on Research Implementation in Health Services Framework (PARIHS)

Research governance framework for health and social care

Senses Framework

Sheltered Care Environment Scale Moos and Lemke

Social Care Institute for Excellence – Dementia Good Practice Exchange

Social Care Institute for Excellence – Living in care, a positive outcome

Social care workforce profile: Age, gender and ethnicity, in Social Care Workforce

Understanding Care Homes: A Research and Development Perspective, Froggatt, K. Davies, S and Meyer ,J. 2009 (eds)

Use of Dementia Care Mapping for person‐centred care in a care provider organization – Guide. British Standards Institute (2010) PAS 800:2010

 

Resources for care home staff

Alzheimer’s Society – Types of Research

Care Homes for Older People: National Minimum Standards

INVOLVE

Involve – Getting Started

INVOLVE Jargon buster

Living Well with dementia: A National Dementia Strategy

Mental Capacity Act 2005: Code of Practice

My Home Life

National Care Home R&D Forum

NHS Choices – Joining a trial

National Institute for Health Research (NIHR)

NIHR Clinical Trials, what they are and what they are not - leaflet

NIHR Understanding clinical trials - leaflet

People in Research

Social Care Institute for Excellence – Dementia Good Practice Exchange

Social Care Institute for Excellence – Gateway

Social Care Institute for Excellence – Living in care, a positive outcome

Social Services Research Group

NIHR - Current Research Available

Residents, Family and Public

Alzheimer’s Society – Types of Research

Care Homes for Older People: National Minimum Standards

INVOLVE

Involve – Getting Started

Involve – What is research?

INVOLVE Jargon buster

Living Well with dementia: A National Dementia Strategy

Medical Research Council

Mental Capacity Act 2005: Code of Practice

My Home Life

National Care Home R&D Forum

NHS Choices – Joining a trial

NIHR Clinical Trials, what they are and what they are not - leaflet

NIHR Understanding clinical trials - leaflet

People in Research

Social Care Institute for Excellence – Living in care, a positive outcome

Search for the latest research in your area

UKCRN - Current Research Available

 

Resources for Network of Research Ready Care Homes

Research Ready Care Home Poster 1

Research Ready Care Home Poster 2

Research Ready Care Home Poster 3

Research Ready Care Home Poster 4

Research Ready Care Home Leaflet for Care Homes

Research Ready Care Home Induction Slides

Research Ready Care Home Leaflet for Researchers

Research Ready Care Home Application form