Huntington’s Disease Research

Emmy-award winning journalist Charles Sabine talks to DeNDRoN about HD Research

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One patient's story why he got involved in research.

Help us find an effective treatment for Huntington’s disease (HD).

HD is a condition that affects behaviour and cognition as well as mobility, swallowing and speech. We are working with researchers and health professionals to develop and deliver studies that slow the progression or delay the onset of Huntington’s disease (HD).

Currently, management of HD is aimed at treating the manifest symptoms, including choreic and dystonic movements and psychiatric disturbance. However, many treatments are prescribed ‘off label’ and there is currently limited evidence-based treatment strategies. As HD is a relatively uncommon condition, collaboration amongst centres expert in HD is required to undertake clinical studies.

If you are a patient, carer, researcher, nurse or member of the public you can help HD research. You could participate in a study or work with DeNDRoN to help shape the direction of HD research.